It WAS all planned out…..

….and I should have known!  We were busy making sure that all things were in place, that plans and information was gathered and ready – then…..


But I digress – I had gone to the hospital and the medi-port was put in, and one of the ‘new’ lymph nodes that indicated new cancer was removed and sent to the lab to identify and be sure of just what cancer we were dealing with. The assumption was that it was the same indolent (read slow-growing), splenic, marginal zone b-cell non-hodgkins lymphoma. Quite a mouthful, right?! I was discharged from the hospital, and we came home to rest up and recover from this step.


Meanwhile, we went to the Oncology office to have “chemo class.” We learned all about Gazyva (an immunological antibody) and Bendamustine ( a chemo drug). I have never had either of these drugs, but knew generally what they would do – the Gazyva would target all the cancerous B-cells and flag them for the body’s immune system to come and kill, and the Bendamustine would do much the same thing – only this drug is unable to ‘target’ any kind of cell – so it goes for all the cancer cells it can find – along with other cells that are ok, but in the wrong place at the wrong time. For me this was so good to hear – I am one of those folks who wants ALL the information, good, bad, and ugly – so this was great information. Somehow knowing what you are taking and what it would do helps immensely in feeling more ‘in control’ of the situation. Of course, along with that came the info on all the side effects and things that ‘might’ happen – makes for scary reading – but worth every bit of it when it does it’s job and the cancer is beat back into submission and me into remission!


On Sept. 5, I had my appointment with the oncologist, the nurse-practitioner, Lucian and I. And all the plans made so far got blown out of the water. The doctor had the results of the biopsy, and now there was a new player on the cancer field. Along with my NHL (non-hodgkins lymphoma) that I have been battling since 2010, now some of that cancer had transformed itself, and turned into another form of NHL. That was not good news, but not only was it a new form, called Follicular Lymphoma, it was also classed as Stage 3B. Stage 3B is not indolent cancer, it is an aggressive form of cancer……and the whole game changed with that one sentence. The old plan was tossed out, and a new one needed to be put in place – and it was called G-CHOP. Doncha just love all these weird acronyms? The good news in this was that this new aggressive form of lymphoma is also classed as ‘curable’ – meaning it could be killed for good!


Now we have a new plan – and today we went to another session of ‘chemo’ class to find out all about it. I already knew about Gazyva – that remains as the immunological targeted antibody that would go after those cancerous B-cells – but the chemo component is a real bunch of ‘bad guys’ – whew! the acronym CHOP stands for the four drugs that make up the regimen: C is for cyclophosphamide (which I have had before), H is for doxorubicin (no idea where the H is in this name).  I have not had this drug before. The O is for vincristine – one of the brand names of t his drug starts with O – hence the O in the acronym. And finally comes P – which is for Prednisone – which I thing everyone is familiar with. Except for the Prednisone, the chemo drugs interfere with the cancer cells and prevent them from dividing and making new cancer cells – a good thing. Bad thing is they come with a bunch of side effects that are not so great – but if they do their job, this temporary bad stuff will result in curing this aggressive cancer for good!


The other not so great thing is I am going from getting a treatment that took 8 minutes and was just a shot in the tummy, to a all-day long IV session – first time is estimated to take 6-7 hours (yup that DID say hours!) – not only that but it is given in a 21-day cycle, and right now, the plan is 6 cycles, which basically means that every single week, my Wednesdays will be spent getting the chemo and Gazyva. At least I get to lay back in a nice recliner – my poor husband gets a sorta one step up from a metal folding chair to sit in. So we’ll be hitting the road REAL early to arrive in time for the appointments at 7:45 am. We’ll be packing snacks, bringing a cushion for Lucian, and lots of reading material – and the laptop and tablet and phones so we can stay connected. I would SO appreciate any prayers you could say for us both as we start on this new journey – and I know we’ll both be praising God thru it all – because HE is in control, and we trust Him completely!